Engaging Consent: Exploring Public Participation and Informed Consent in Biobanking
Against this background, we are going to reveal how ethical, legal, and social implementations regarding informed consent in biobanks are addressed in participatory practices. In doing so, we refer to data gathered within the Austrian BBMRI.at project, which is part of the European biobanking initiative BBMRI ERIC. Our empirical study consists of a qualitative in-depth analysis of (1) different forms of informed consent sheets applied in biobanking practice in Austria and (2) of discussions of biobank-stakeholder with members of the public. The discussions were organized as citizen-expert-panels, a method designed and realised in the project in order to link different forms of knowledge and to foster public engagement in the Austrian biobanking landscape. In our paper we will explore different examples of informed consent and linking it to rationales expressed during six citizen-expert-panels that were held in Austria.