Barriers and Opportunities for Citizen Science in Biomedical and Health Research
Methodologically, the project is based on a case study approach. The study focuses on two health and biomedical research centers. A mixed qualitative and quantitative approach is being applied. First, 21 in-depth interviews have been conducted with a variety of stakeholders (researchers, project managers, and university staff) associated with these institutions in the field of biomedical and health research. The profiles were selected based on gender, professional category (alternating between profiles with varying levels of experience), and knowledge area.
Additionally, a questionnaire was administered to staff members at both centers. The purpose of this survey is to understand the current work being done in citizen science at these institutions, as well as to identify the main challenges and incentives encountered in its implementation.
The main findings revolve around intrinsic and extrinsic motivations for researcher participation in the development of science and innovation in line with the Responsible Research and Innovation (RRI) philosophy, specifically in the context of citizen science. Results highlight the importance of support actions from the studied entities (whether in project definition, audience engagement, or dissemination of calls, among others). Another notable aspect is the variation in motivations and challenges depending on the research subject and the profile of those involved. Finally, maintaining long-term commitment presents a challenge. Despite high expectations and the support of public and institutional policies, sustaining professional and non-professional commitment to citizen science initiatives over time is difficult.